ABSTRACT: Building on the findings of the previous chapters’ descriptions of family caregivers’ roles and responsibilities, this chapter examines caregivers’ experiences in health care and long-term services and supports as they try to fulfill these roles.
Providers can likewise undermine decision making if they inappropriately direct their advice to the CG instead of the older adult—or when providers exclude CGs whose involvement is desired by the older adult. The experiences of caregivers in advocating for older adults mirror the difficulties that many Americans face in obtaining high-quality, high-value health care services. Care delivery is fragmented; there is little, if any coordination between the health care and LTSS sectors; provider reimbursement policies discourage providers from taking the time to speak with individuals about their preferences, needs, and values; services are costly; and individual’s access to understandable and timely health information is often elusive. Effects of the NYU Caregiver Intervention-Adult Child on residential care placement. CGs may not be able to access timely and accurate information about older adults’ prescribed medications—or may not receive adequate training to manage or administer them. As a result, they may unintentionally make medication mistakes, or they may not be able to detect medication errors or side effects.