When you cough, when you do your treatments, when you take your pills, when you feel weak - I don’t think of you as sick. That I must take advantage of the present, that living life is not about postponing things.
That feelings, experiences, choices must be faced now, not tomorrow.
I believe it is important to be a true friend, someone you can talk to, about your CF, about anything.
It is important that we're both in tune with one another when it comes to your CF. You’d think as someone in the healthcare field I’d have more knowledge about this chronic illness but pharmacy school mostly concentrated in teaching us about the most common pulmonary diseases like asthma and COPD.
Your having CF has increased my awareness and precautions to be preventative and proactive in staying healthy.
When my girls or I get sick, I'm more cautious and try to protect you so you don't end up in the hospital.
BC: How do you stay positive in facing life with me having CF? We are all going to die, some sooner, some later - it’s inevitable. I think you do plenty for the CF community and I wouldn’t change that for the world.
MW: I remember you mentioning having CF from day one, and being more intrigued by you because of it. I remember spending hours on the internet researching everything about CF and getting increasingly worried and sad about starting a friendship with someone living with a chronic illness and possibly losing them sooner than later.The conversation and support that came through the phone conversations from this very new person in my life, conveyed something very powerful and important to me in a time of significiant difficulty.In one of the most difficult times in my life, she was there, and didn't run.You telling me you almost died back in 2012 from getting the flu and spending 3 weeks in the hospital is something I always have in my mind when we get sick here at home.I think I take better care of my own health since I've met you. I don't think twice about ever being short of breath. BC: What are the hardest and best parts about my having CF? It hurts, it’s painful, it pretty much sucks, but I’m not afraid of it.